Research and Resources

DSFSAG Position Statement on Research:

DSFSAG has been helping to fund research since 2004.

The following organizations support ground-breaking research:

Clinical Trials
A multi-center clinical Trial for Down syndrome. Rush University Medical Center is one of the trial centers.

Down Syndrome Research Foundation
The Down Syndrome Research Foundation initiates and participates in research that provides insight into the unique learning styles of individuals with Down syndrome.

National Down Syndrome Society (NDSS) Research
Through a variety of research programs and activities, the National Down Syndrome Society has played a major role in advancing knowledge about Down syndrome in an effort to enhance the quality of life and realize the potential of individuals born with this genetic condition.

Stanford Center for Down Syndrome Research
The Stanford Center for Down Syndrome Research seeks to help people with Down syndrome lead healthier and happier lives by rapidly and effectively applying research discoveries to useful treatments.

Johns Hopkins University School of Medicine
The Reeves laboratory complements genetic analyses in human beings with the creation and characterization of mouse models to understand why and how gene dosage imbalance disrupts development in DS.

Lumind Foundation**
Since 2004, LuMind Research Down Syndrome Foundation has created opportunities for people of all ages with Ds by igniting research breakthroughs, including lines of discovery unraveling the connections between Alzheimer’s disease and Ds.

The University of Arizona Down Syndrome Research Group
Researchers in the Department of Psychology at the University of Arizona have teamed together to develop a research group devoted to understanding the cognitive difficulties faced by individuals with Down syndrome

University of Colorado, Denver School of Medicine
The Linda Crnic Institute for Down Syndrome aims to eradicate the ill effects associated with Down syndrome and significantly improve the lives of people with Down syndrome throughout the world.

Down Syndrome Brain Train
A Board-certified medical geneticist, Dr. Brian Skotko has dedicated his professional energies toward children with cognitive and developmental disabilities. Dr. Skotko is a leader on clinical and translational research about Down syndrome. He has been featured in The Wall Street Journal, The New York Times, The Washington Post, The L.A. Times, NPR’s “On Point,” and ABC’s “Good Morning America.”

**DSFSAG supports Ds research, donating $5,000 annually.