Health Resources


Aging and Down syndrome Guide book

Health Issues by Dr. Len Leshin

Health Care Guidelines  – from NDSS website

Nutrition from NDSS website



“The Heart and Down Syndrome” from NDSS website

“Mental Health Issues in Down Syndrome” from NDSS website

“Vision and Down Syndrome” from NDSS website

“Ear, Nose and Throat and Down Syndrome” from NDSS website

“Gastrointestinal Tract and Down Syndrome” from NDSS website

Endocrine Conditions and Down Syndrome” from NDSS website

“Atlantoaxial Instability” from NDSS website

“Obstructive Sleep Apnea & Down syndromefrom NDSS website

“Dental Issues & Down syndrome” from NDSS website

“Blood Diseases & Down syndrome from NDSS website

“ADHD & Down syndrome” from the NDSS website

“Autism & Down syndrome” form the NDSS website

Introducción a la Enfermedad de Alzheimer

“Alzheimer’s Disease & Down syndrome” from NDSS website



“Managing Behavior” from NDSS website

Stubborn is as Stubborn Does – article


Down Syndrome Heart Group

Mended Little Hearts South Bend IN (Support group for parents with children with heart defects)
Jennifer Gorski
574 217 8244


Medicaid Waivers
(sets aside parental income and gives the individual with Ds Medicaid coverage based on their diagnosis-not income based. Wait lists are long, so it is important to sign up as soon as possible.

Resources for families in MI



Behavioral Analysis Center for Autism  (BACA) – Elkhart

Behavior Services & Therapy
Currently we offer Behavior Management and Music Therapy services for developmentally disabled adults and children through Private Pay and Medicaid Waivers (DD, SSW, TBI, Autism).

Hannah and Friends
Hannah and Friends is a 501(c)(3) nonprofit organization dedicated to improving the quality of life for children and adults with special needs.

Lighthouse Autism Center – Mishawaka, Warsaw and Plymouth

Logan Center – South Bend
Provides supports for people with disabilities

Logan Autism Centers

Memorial Behavioral & Developmental Pediatrics
Memorial Children’s Hospital’s Behavioral & Developmental Pediatrics program provides family-focused care for children at risk for developmental delay.

Memorial’s Children’s Therapy Center
At Memorial’s Children’s Therapy Center, your children are our first priority. Your family will be guided along the journey toward better health by a team of dedicated professionals—because helping children do great things is our passion. From speech to occupational and physical therapy, certified therapists recognize the indispensable role that families play in the ongoing care of children – especially those with special health care needs

Midwest Orthotic & Technology Center
SureStep is a revolutionary new concept in bracing, specifically designed for children with normal to lower muscle tone

St. Joseph Regional Medical Center Pediatric Specialty Clinics
The Pediatric Specialty Clinics, in partnership with the Riley Hospital for Children in Indianapolis, serve as a referral center for children whose conditions require specialized evaluation and treatment.

Pediatric Specialists from the Riley Hospital for Children and from our local community meet with patients and families on a regular, routine basis.

St. Joseph Regional Medical Center Pediatric Therapy
Here, children with diagnoses such as cerebral palsy, developmental delay, genetic syndromes, autism, orthopedic conditions or dysphagia can receive therapy in a personalized, compassionate, family-friendly environment


Targeted Nutrition – supplements



Last updated 2/11/2016 sp

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